Abstract
Introduction: Neurological disorders have become the leading cause of global disease burden, posing a significant public health challenge. With an aging global population, conditions like Alzheimer's disease and other dementias are expected to increase demands on healthcare services. Variations in risk factors and healthcare services across the country are impacting the diagnosis, treatment, care, and support, with many regions lacking sufficient resources. Additionally, there is a need to improve monitoring of dementia-related metrics and advance research, particularly regarding treatment and access to clinical trials. This study provides an overview of the current care landscape for dementia patients by analyzing real-world-based data. Gaps and challenges in dementia care, as well as suggestions for optimal care, are discussed.
Methods: Three plenary sessions were held, gathering healthcare professionals experienced in dementia care, along with representatives from patient associations. During these virtual meetings, participants shared their insights and discussed the current state of dementia care and treatment in Portugal. Key factors were proposed to guide a roadmap for transitioning from scenario planning to concrete strategic actions.
Results: National dementia care initiatives with implications for care quality were analyzed. The incidence of dementia continues to rise, including in Portugal, although comprehensive data remains limited. Dementia poses a significant healthcare challenge, necessitating a multidisciplinary approach at every stage of the disease.
Conclusion: Countries need detailed national plans that outline how resources will be allocated to enhance dementia awareness, train and support caregivers, and mobilize efforts to reduce risk factors and strengthen research capabilities. These plans should be shaped by input from consumers and adapted to local contexts, aiming to create an inclusive society for individuals living with dementia and their families.