Evaluating the Quality of Life and Transition of Adolescents and Young Adults with Asthma in an Inner City

Main Article Content

Angelica Gangemi Nabil Abou-Baker Kristin Wong



This study examines the correlation of the Mini Pediatric Asthma Quality of Life Questionnaire (miniPAQLQ) with the Got Transitions Readiness Assessment Survey (GTRAS) of inner-city adolescents and young adults with asthma in Newark, New Jersey.



One hundred six patients with asthma, aged 12-21 years old, were assessed at University Hospital in Newark, NJ while receiving typical care. In this cross-sectional study, patients were assessed using the miniPAQLQ and GTRAS tools. General demographics were captured. MiniPAQLQ sections on activity, symptom, and emotional function, were compared to the GTRAS questions on perceived transition readiness and ability to complete healthcare tasks.



Fifty-three percent of the patients were female, 57% were African American, 37% were Latino/a, and 97% had insurance. The overall median quality of life (QOL) score was 6. Specific activity, symptom and emotional function QOL scores did not correlate with overall perceived transition readiness. However, QOL scores >5 did correlate with patients’ abilities to complete specific health-related tasks of transition, especially when comparing emotional function and “knowing” their health.



Our results demonstrate that the emotional function of adolescents and young adults with asthma is significantly linked to their ability to complete healthcare tasks independently, indicating that a psychological-based approach to transition may be necessary. Low emotional QOL scores may help identify patients at risk of poor transition who would benefit from additional intervention. Further research is needed to assess quality of life and its effects on development of these patients.


Keywords: asthma, adolescent, young adult, transition, independence, quality of life


Download data is not yet available.

Article Details

How to Cite
GANGEMI, Angelica; ABOU-BAKER, Nabil; WONG, Kristin. Evaluating the Quality of Life and Transition of Adolescents and Young Adults with Asthma in an Inner City. Medical Research Archives, [S.l.], v. 8, n. 1, jan. 2020. ISSN 2375-1924. Available at: <https://esmed.org/MRA/mra/article/view/2031>. Date accessed: 26 may 2022. doi: https://doi.org/10.18103/mra.v8i1.2031.
Research Articles


1. Rosen DS, Blum RW, Britto M, Sawyer SM, Siegel DM. Transition to adult health care for adolescents and young adults with chronic conditions: Position paper of the society for adolescent medicine. J Adolesc Health. 2003;33(4):309–11. DOI:10.1016/S1054-139X(03)00208-8.

2. Suris JC, Michaud PA, Viner R. The adolescent with a chronic condition. Part I: Developmental issues. Arch Dis Child. 2004;89(10):938–942. DOI:10.1136/adc.2003.045369.

3. Clark NM, Dodge JA, Thomas LJ, Andridge RA, Awad D, Paton JY. Asthma in 10 to 13 Year Olds: Challenges at a Time of Transition. Clinical Pediatrics. 2010; 49(10):931-937. DOI:10.1177/0009922809357339.

4. Bitsko M.J., Everhart R.S., Rubin B.K. The adolescent with asthma. Paediatr Respir Rev. 2014;15(2):146-153. DOI:10.1016/j.prrv.2013.07.003.

5. McManus MA, Pollack LR, Cooley WC, McAllister JW, Lotstein D, Strickland B, et al. Current Status of Transition Preparation Among Youth With Special Needs in the United States. Pediatrics. 2013;131(6):1090-1097. DOI: 10.1542/peds.2012-3050.

6. Insabella G, Grey M, Knafl G, Tamborlane W. The transition to young adulthood in youth with type 1 diabetes on intensive treatment. Pediatric Diabetes. 2007;8(4):228–234. DOI:10.1111/j.1399-5448.2007.00266.x.

7. Witkop M, Guelcher C, Forsyth A, Hawk S, Curtis R, Kelley L, et al. Treatment outcomes, quality of life, and impact of hemophilia on young adults (aged 18–30 years) with hemophilia. Am J Hematol. 2015;90:S3–S10. DOI:10.1002/ajh.24220.

8. Kakkar F, Van der Linden D, Valois S, Maurice F, Onnorouille M, Lapointe N, et al. Health outcomes and the transition experience of HIV-infected adolescents after transfer to adult care in Québec, Canada. BMC Pediatrics. 2016;16:109. DOI: 10.1186/s12887-016-0644-4.

9. National Asthma Education and Prevention Program, Third Expert Panel on the Diagnosis and Management of Asthma. Expert Panel Report 3: Guidelines for the Diagnosis and Management of Asthma. Bethesda (MD): National Heart, Lung, and Blood Institute (US). Published August 2007. Available from: https://www.ncbi.nlm.nih.gov/books/NBK7232/. Accessed January 2, 2018.

10. Asher I, Pearce N. Global burden of asthma among children. The International Journal of Tuberculosis and Lung Disease. 2014;18(11):1269–1278. DOI: 10.5588/ijtld.14.0170.

11. Centers for Disease Control and Prevention. 2017 National Health Interview Survey Data: Current Asthma Population Estimates. Available from: https://www.cdc.gov/asthma/nhis/2017/table3-1.htm. Published March 2019. Accessed March 25, 2019.

12. New Jersey Department of Health. Asthma in New Jersey: Essex County Asthma Profile 2014; 3. Available from: https://www.nj.gov/health/fhs/chronic/documents/asthma_profiles/essex.pdf. Published 2014. Accessed January 2, 2018.

13. Gleason J, Fagliano J. Associations of daily pediatric asthma emergency department visits with air pollution in Newark, NJ: utilizing time-series and case-crossover study designs. Journal of Asthma. 2015;52(8): 815-822. DOI: 10.3109/02770903.2015.1033726.

14. Bruzzese JM, Stepney C, Fiorino E, Bornstein L, Wang J, Petkova E, et al. Asthma Self-Management is Sub-optimal in Urban Hispanic and African American/Black Early Adolescents with Uncontrolled Persistent Asthma. J Asthma. 2012;49(1): 90–97. DOI: 10.3109/02770903.2011.637595.

15. Gibson-Scipio W, Gourdin D, Krouse HJ. Asthma Self-Management Goals, Beliefs and Behaviors of Urban African American Adolescents Prior to Transitioning to Adult Health Care. J. Pediatr. Nurs. 2015;30(6):e53–e61. DOI: 10.1016/j.pedn.2015.06.012.

16. Sundberg R, Palmqvist M, Tunsäter A, Torén K. Health-related quality of life in young adults with asthma. Respir Med. 2009;103(10):1580-1585. DOI: 10.1016/j.rmed.2009.04.023.

17. Annett RD, Bender BG, Lapidus J, Duhamel TR, Lincoln A. Predicting children's quality of life in an asthma clinical trial: what do children's reports tell us?. J Pediatr. 2001;139(6):854–861. DOI: 10.1067/mpd.2001.119444.

18. Adams RJ, Wilson DH, Taylor AW, Daly A, Tursan d’Espaignet E, Dal Grande E, et al. Coexistent chronic conditions and asthma quality of life: a population-based study. Chest. 2006;129(2):285–291. DOI: 10.1378/chest.129.2.285.

19. Got Transitions. Transition Readiness Assessment for Youth. Available from: http://www.gottransition.org/resourceGet.cfm?id=224. Published 2014. Accessed January 2, 2018.

20. Juniper EF. “Mini Paediatric Asthma Quality of Life Questionnaire.” QOL Technologies LTD. 1999. Retrieved from: https://www.qoltech.co.uk/minipaqlq.html. Accessed April 9, 2019.