Patients’ empowerment and the role of patients’ education

Main Article Content

Maria D. Navarro

Abstract

Society has changed dramatically in recent decades not only from the demographic, social and economic point of view, but also from the educational aspect. The current population has higher levels of education than in previous times and can access information in a relatively easy way. In addition, the relationship between the healthcare professional and the patient has evolved from the paternalistic medicine to a more informed and participatory patient-provider relationship.


Patient participation and empowerment in the health decision-making process means that the patient has the opportunity to share his/her opinion, knowledge, experience and expectations with other patients, as well as with the health professionals in order to make informed decisions.  With this evolution of the role of the patient in the current society, patients have asked for multidisciplinary and coordinated work among professionals to respond to their needs for diagnosis, control and treatment.


Patient's participation and empowerment can be conducted both, in the management of the disease, as well as helping to improve different aspects of health services. Participation and empowerment also mean representing other patients. In all cases, patients’ education and training, using clear and plain language, and patients’ confidence play a pivotal role.


The aim of this review is to present a summary of the scope of the situation regarding patients’ empowerment and education.

Keywords: Patient’s participation, patient’s empowerment, patient’s education

Article Details

How to Cite
NAVARRO, Maria D.. Patients’ empowerment and the role of patients’ education. Medical Research Archives, [S.l.], v. 8, n. 12, dec. 2020. ISSN 2375-1924. Available at: <https://esmed.org/MRA/mra/article/view/2306>. Date accessed: 22 dec. 2024. doi: https://doi.org/10.18103/mra.v8i12.2306.
Section
Review Articles

References

1. Crawford MJ, Rutter D, Manley C, et al. Systematic review of involving patients in the planning and development of healthcare. BMJ. 2002; 325: 1263-1267.
2. Mocford C, Staniszewska S, Griffiths F, et al. The impact of patient and public involvement on UK NHS health care: a systematic review. Int J Qual Health Care. 2012; 24(1): 28-38.
3. Bravo P, Edwards A, Barr PJ, et al. Conceptualising patient empowerment: a mixed methods study. BMC Health Ser Res. 2015; 15: 252-265.
4. Souliotis K. Patient participation in contemporary health care: promoting a versatile patient role. Health Expectations. 2016; 19: 175-178.
5. Menichetti J, Libreri C, Lozza E, et al. Giving patients a starring role in their own care: a bibliometric analysis of the on-going literature debate. Health Expectations. 2014; 19: 516-526.
6. Longtin Y, Sax H, Leape LL, et al. Patient participation: Current knowledge and applicability to patient safety. Mayo Clin Proc. 2010; 85(1): 53-62.
7. NHS ladder of engagement.
https://www.england.nhs.uk/participation/resources/ladder-of-engagement-2/. Accessed October 2, 2020.
8. Gaber J. Building “A ladder of citizen participation”. J Am Plann Assoc. 2019; 85: 188-201.
9. European Patients Forum. Patient empowerment. Living with chronic disease. https://www.eu-patient.eu/ . Accessed October 2, 2020.
10. World Health Organization. Patient empowerment and health care 2009. https://www.who.int/ . Accessed October 2, 2020.
11. European Patient Forum. Background brief: Patient Empowerment. 2015. https://www.eu-patient.eu/ . Accessed October 2, 2020.
12. Cerezo PG, Juvé_Udina ME, Delgado-Hito P. Concepts and measures of Patient empowerment: a comprehensive review. Rev Esc Enferm. USP 2016; 50(4): 664-671.

13. Paterick TE, Patel N, Tajik J, Chandrasekaran K. Improving health outcomes through patient education and partnerships with patients. Proc (Bayl Univ Med Cent.) 2017; 30(1): 112-113.
14. Hoving C, Visser A, Mullen PD, Van den Borne B. A history of patient education by health professionals in Europe and North America: From authority to shared decision making education. Patient Educ Couns. 2010; 78: 275-281.
15. Sá GM, Silva FL, Santos AM, Noleto JS, Gouveiea MT, Nogueira LT. Technologies that promote health education for the community elderly: integrative review. Rev Latino-Am Enfermagem. 2019; 27:e3186.
16. Nutbeam D. The evolving concept of health literacy. Soc Sci Med. 2008; 67(12): 2072-2078.
17. Navarro-Rubio MD, Rudd R, Rosenfeld L, et al. Health literacy: implications for the health system. Med Clin (Barc.) 2016; 147(4): 171-175.
18. Risling T, Martínez J, Young J, et al. Evaluating patient empowerment in association wiyh eHealth technology: Scoping review. J Medical Internet Re.s 2017; 19(9): e329.
19. Yen PH, Leasure R. Use and effectiveness of the teach-back method in patient education and health outcomes. Fed Pract. 2019; 36(6):284-289.
20. Stenberg U, Koricho AT, Kristoffersen LG, et al. How can we support children, adolescents and young adults in managing chronic health challenges? A scoping review on the effects of patient education interventions. Health Expectations. 2019; 22: 849-862.
21. Self Management Resource Center. Stanford University.
https://www.selfmanagementresource.com/ . Accessed October 2, 2020.
22. The NHS Expert Patient Program. https://www.nelft.nhs.uk/epp/ . Accessed October 2, 2020.
23. Halvorsen K, Dihle A, Hansen C, et al. Empowerment in health care: A thematic synthesis and critical discussion of concept analyses of empowerment. Patient Educ Couns. 2020; 103: 1263-1271.
24. Blaiss MS, Steven GC, Bender B, et al. Shared decision making for the allergist. Ann Allergy Asthma Immunol. 2019; 122: 463-470.
25. Chen J, Mullins CD, Novak P, et al. Personalized strategies to activate and empower patients in health care and reduce health disparities. Health Educ Behav. 2016; 43(1): 25-34.
26. Grad R, Légaré F, Bell NR, et al. Shared decision making in preventive health care. Can Fam Physician. 2017; 63: 628-684.
27. Stiggelbout AM, Van der Weijden T, De Wit MP, et al. Shared decision making: really putting patients at the centre of healthcare. BMJ. 2012; 344: e256.
28. Patak L, Wilson-Stronks A, Costello J, et al. Improving patient-provider communication: A call to action. J Nurs Adm. 2009; 39(9): 372-376.