Getting Sick and Living with Cancer: Narratives Found in Blogs
Main Article Content
Abstract
This study, of data collection with documentative, descriptive, exploratory and interpretative basis, anchored in Paul Ricoeur's hermeneutics-phenomenology, aimed at analyzing, from the point of view of the patient, how it is to live with osteossarcoma in Brazil. Personal narratives were investigated in 259 posts in eight blogs. In this article we present three emerging categorical themes: difficulties in accessing treatment, physical barriers and attitude barriers. The posts pointed indicated that being affected by osteosarcoma implies: facing barriers that involve geographical distance, transportation, and accommodation; dealing with failures in the health service related to delays in diagnosis, test results, and procedures; physical, including architectural obstacles; and stigmatization. Emotional concerns, especially related to relationships with family, friends, and feelings about society´s reactions toward the person with the disease were mentioned as important as the concrete barriers they faced on an everyday basis.
Keywords:
osteosarcoma, cancer, health services, health policies, stigma
Article Details
How to Cite
OLIVEIRA, Walter Ferreira de.
Getting Sick and Living with Cancer: Narratives Found in Blogs.
Medical Research Archives, [S.l.], v. 10, n. 7, july 2022.
ISSN 2375-1924.
Available at: <https://esmed.org/MRA/mra/article/view/2781>. Date accessed: 19 apr. 2024.
doi: https://doi.org/10.18103/mra.v10i7.2781.
Section
Articles
The Medical Research Archives grants authors the right to publish and reproduce the unrevised contribution in whole or in part at any time and in any form for any scholarly non-commercial purpose with the condition that all publications of the contribution include a full citation to the journal as published by the Medical Research Archives.
References
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Aljubran, A. H., Griffin, A., Pintilie, M, M., & Blackstein, M. (2009). Osteosarcoma in adolescents and adults: survival analysis with and without lung metastases. Ann Oncol, 20(6), 1136-1141.
Ambroggia, M., Biasinia, C., Del Giovanec, C., Fornarib, F. & Cavanna, L. (2015). Distance as a Barrier to Cancer Diagnosis and Treatment: Review of the Literature. The Oncologist, 20(12), 1–8.
American Psychological Association. (1994). Publication manual (4ª ed.). Washington, DC: Author.
Aureliano, W. A. (2007). Body. Health and work: (re)thinking the uses of body and the “feminine roles” in the breast cancer disease. Rev Ciênc Soc, 26, 105-23.
Bennadi, D. (2013). Self-medication: a current challenge. J Basic Clin Pharm, 5(1), 19-23.
Biber, D., Conrad, S., & Reppen, R. (1998). Corpus Linguistics: Investigating Language Structure and Use. New York: Cambridge University Press.
CARTER, Nancy; BRYANT-LUKOSIUS, Denise; DICENSO, Alba; BLYTHE, Jennifer; NEVILLE, Alan J. (2014). The use of triangulation in qualitative research. Oncol Nurs Forum. 41(5). Available at file:///D:/Issues/PQ/Tringulacao/carter2014.pdf Acessed 9 mar 2022
Costain, S. K. & Hewison, J. (1999). Experiencing Cancer. Philadelphia: Open University Press.
Daher, M. (2012). Cultural beliefs and values in cancer patients. Ann Oncol, 23(suppl 3), 66-69.
Fontanella, BJB; Ricas, J & Turato, ER. (2008). Saturation sampling in qualitative health research: theoretical contributions. Cad. Saúde Pública, Rio de Janeiro, 24(1):17-27.
Foucault, M. (1995). O sujeito e o poder. [Thee subject and Power] In: Dreyfus, H., & Rabinow, P. Michel Foucault uma trajetória filosófica [Michel Foucault a philosophical path]. Rio de Janeiro: Forensic Universitária.
Goffman, E. (1986). Stigma: notes on the management of spoiled identity. New York: Touchstone.
Guerra, R. B., Tostes, M. D., Miranda, C. L., Camargo, P. O., Baptista, A.M., Caiero, M.T., Machado, S. T. M., Abadi, M. D., de Oliveira M. C. R., & Filippi, R. Z. (2006). Comparative analysis between osteosarcoma and Ewing's sarcoma: evaluation of the time from onset of signs and symptoms until diagnosis. Clinics, 61(2), 99-106.
Gutiérrez, D. M. D. & Minayo, M. C. S. (2006). Family, social network, and health: the needed imbrication. In: Proceedings, International Seminar: Making gender 8 – Body, violence, and Power. (p. 1-7). Florianópolis, Brazil. .
Hoffman, K. E., McCarthy, E. P., Recklitis, C. J. & Ng, A. K. (2009). Psychological distress in long-term survivors of adult-onset cancer: Results from a national survey. Arch of Internal Med, 169(14), 1274-1281.
INCA – National Cancer Institute (2018). Cancer National Statistics. Available at https://www.inca.gov.br/numeros-de-cancer Acessed 9 mar 2022.
Keusch, G. T., Wilentz, J., & Kleinman, A. (200.6). Stigma and global health: developing a research agenda. Lancet, 367( 9509), 525-527.
Kim, M. S., Lee, S. Y., Cho, W. H., Song, W. S., Koh, J. S., Lee, J. A., J. Y., Shin, D. S., Jeon, D. G. (2009). Prognostic effects of doctor-associated diagnostic delays in osteosarcoma. Arch Orthop Trauma Surg, 129(10), 1421-1435.
Malta, J. D. S., Schall, V. T., & Modena, C. M. (2009). The moment of diagnosis and the difficulties encountered by pediatric oncologists in cancer treatment in Belo Horizonte. Rev Bras Cancerol, 55(1), p. 33-9.
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Pêcheux, M. (1990). Discurso: estrutura ou acontecimento. [Discourse, structure or event]. Campinas: Pontes.
Picci, P., Mercuri, M., Ferrari, S., Alberghini, M., Briccoli, A., Ferrari, C., Pignotti, E., Bacci, G. (2010). Survival in high-grade osteosarcoma: improvement over 21 years at a single institution. Ann Oncol, 21(6),1366-1373.
Ricoeur, P. (1981). Paul Ricoeur hermeneutics and the human sciences. (Thompson, J. B. , Ed.). New York: Cambridge University Press.
Schain, W. S. (1994). Barriers to clinical trials. Cancer, 74 (Suppl.), 2666-2671.
Sizínio, H., Barros, F. T., Xavier, R., & Pardini Junior, A. G. (2009). Orthopedics and traumatology: principles and practice. 4 ed. Porto Alegre: Artmed.
Skinner, R., Wallace, W. H., & Levitt, G. A. (2006). Long-term follow-up of people who have survived cancer during childhood. Lancet Oncol, 7(6), 489-498.
Syed, S. T., Gerber, B. S., & Sharp, L. K. (2013). Traveling Towards Disease: Transportation Barriers to Health Care Access. J Community Health, 38(5), 976–993.
Weiss, M. & Ramakrishna, J. (2006). Stigma interventions and research for international health. Lancet, 367(9509), 536-538.
Wünsch Filho, V., Antunes, J. L. F., Boing, A. F., Lorenzi, R. L. (2008). Prospects of research on social determinants in câncer. Physis, 18(3), 427-450.
Aguiar, M. (2005). Luto antecipatório em crianças com câncer. Dissertação de Mestrado, programa de Pós-graduação em Psicologia Clínica, Pontifícia Universidade Católica de São Paulo, SP.
Aljubran, A. H., Griffin, A., Pintilie, M, M., & Blackstein, M. (2009). Osteosarcoma in adolescents and adults: survival analysis with and without lung metastases. Ann Oncol, 20(6), 1136-1141.
Ambroggia, M., Biasinia, C., Del Giovanec, C., Fornarib, F. & Cavanna, L. (2015). Distance as a Barrier to Cancer Diagnosis and Treatment: Review of the Literature. The Oncologist, 20(12), 1–8.
American Psychological Association. (1994). Publication manual (4ª ed.). Washington, DC: Author.
Aureliano, W. A. (2007). Body. Health and work: (re)thinking the uses of body and the “feminine roles” in the breast cancer disease. Rev Ciênc Soc, 26, 105-23.
Bennadi, D. (2013). Self-medication: a current challenge. J Basic Clin Pharm, 5(1), 19-23.
Biber, D., Conrad, S., & Reppen, R. (1998). Corpus Linguistics: Investigating Language Structure and Use. New York: Cambridge University Press.
CARTER, Nancy; BRYANT-LUKOSIUS, Denise; DICENSO, Alba; BLYTHE, Jennifer; NEVILLE, Alan J. (2014). The use of triangulation in qualitative research. Oncol Nurs Forum. 41(5). Available at file:///D:/Issues/PQ/Tringulacao/carter2014.pdf Acessed 9 mar 2022
Costain, S. K. & Hewison, J. (1999). Experiencing Cancer. Philadelphia: Open University Press.
Daher, M. (2012). Cultural beliefs and values in cancer patients. Ann Oncol, 23(suppl 3), 66-69.
Fontanella, BJB; Ricas, J & Turato, ER. (2008). Saturation sampling in qualitative health research: theoretical contributions. Cad. Saúde Pública, Rio de Janeiro, 24(1):17-27.
Foucault, M. (1995). O sujeito e o poder. [Thee subject and Power] In: Dreyfus, H., & Rabinow, P. Michel Foucault uma trajetória filosófica [Michel Foucault a philosophical path]. Rio de Janeiro: Forensic Universitária.
Goffman, E. (1986). Stigma: notes on the management of spoiled identity. New York: Touchstone.
Guerra, R. B., Tostes, M. D., Miranda, C. L., Camargo, P. O., Baptista, A.M., Caiero, M.T., Machado, S. T. M., Abadi, M. D., de Oliveira M. C. R., & Filippi, R. Z. (2006). Comparative analysis between osteosarcoma and Ewing's sarcoma: evaluation of the time from onset of signs and symptoms until diagnosis. Clinics, 61(2), 99-106.
Gutiérrez, D. M. D. & Minayo, M. C. S. (2006). Family, social network, and health: the needed imbrication. In: Proceedings, International Seminar: Making gender 8 – Body, violence, and Power. (p. 1-7). Florianópolis, Brazil. .
Hoffman, K. E., McCarthy, E. P., Recklitis, C. J. & Ng, A. K. (2009). Psychological distress in long-term survivors of adult-onset cancer: Results from a national survey. Arch of Internal Med, 169(14), 1274-1281.
INCA – National Cancer Institute (2018). Cancer National Statistics. Available at https://www.inca.gov.br/numeros-de-cancer Acessed 9 mar 2022.
Keusch, G. T., Wilentz, J., & Kleinman, A. (200.6). Stigma and global health: developing a research agenda. Lancet, 367( 9509), 525-527.
Kim, M. S., Lee, S. Y., Cho, W. H., Song, W. S., Koh, J. S., Lee, J. A., J. Y., Shin, D. S., Jeon, D. G. (2009). Prognostic effects of doctor-associated diagnostic delays in osteosarcoma. Arch Orthop Trauma Surg, 129(10), 1421-1435.
Malta, J. D. S., Schall, V. T., & Modena, C. M. (2009). The moment of diagnosis and the difficulties encountered by pediatric oncologists in cancer treatment in Belo Horizonte. Rev Bras Cancerol, 55(1), p. 33-9.
Martins, G. E. & Perez, S. V. (2012). Follow up of treated osteossarcom patients. Acta Ortop. Bras., 20(4), 235-239.
Pêcheux, M. (1990). Discurso: estrutura ou acontecimento. [Discourse, structure or event]. Campinas: Pontes.
Picci, P., Mercuri, M., Ferrari, S., Alberghini, M., Briccoli, A., Ferrari, C., Pignotti, E., Bacci, G. (2010). Survival in high-grade osteosarcoma: improvement over 21 years at a single institution. Ann Oncol, 21(6),1366-1373.
Ricoeur, P. (1981). Paul Ricoeur hermeneutics and the human sciences. (Thompson, J. B. , Ed.). New York: Cambridge University Press.
Schain, W. S. (1994). Barriers to clinical trials. Cancer, 74 (Suppl.), 2666-2671.
Sizínio, H., Barros, F. T., Xavier, R., & Pardini Junior, A. G. (2009). Orthopedics and traumatology: principles and practice. 4 ed. Porto Alegre: Artmed.
Skinner, R., Wallace, W. H., & Levitt, G. A. (2006). Long-term follow-up of people who have survived cancer during childhood. Lancet Oncol, 7(6), 489-498.
Syed, S. T., Gerber, B. S., & Sharp, L. K. (2013). Traveling Towards Disease: Transportation Barriers to Health Care Access. J Community Health, 38(5), 976–993.
Weiss, M. & Ramakrishna, J. (2006). Stigma interventions and research for international health. Lancet, 367(9509), 536-538.
Wünsch Filho, V., Antunes, J. L. F., Boing, A. F., Lorenzi, R. L. (2008). Prospects of research on social determinants in câncer. Physis, 18(3), 427-450.