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01 · ABSTRACT

Abstract

This study, of data collection with documentative, descriptive, exploratory and interpretative basis, anchored in Paul Ricoeur's hermeneutics-phenomenology, aimed at analyzing, from the point of view of the patient, how it is to live with osteossarcoma in Brazil. Personal narratives were investigated in 259 posts in eight blogs. In this article we present three emerging categorical themes: difficulties in accessing treatment, physical barriers and attitude barriers. The posts pointed indicated that being affected by osteosarcoma implies: facing barriers that involve geographical distance, transportation, and accommodation; dealing with failures in the health service related to delays in diagnosis, test results, and procedures; physical, including architectural obstacles; and stigmatization. Emotional concerns, especially related to relationships with family, friends, and feelings about society´s reactions toward the person with the disease were mentioned as important as the concrete barriers they faced on an everyday basis.  

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02 · PUBLICATION RECORD

Article details

JournalMedical Research Archives
IssueVol 10 No 7 (2022): Vol.10 Issue 7 July 2022
SectionArticles
Published31 July 2022
DOI10.18103/mra.v10i7.2781
ISSN2375-1924
03 · RIGHTS & REUSE

Rights & reuse

This article is published under a Creative Commons Attribution License (CC BY 3.0) and may be shared or distributed by anyone as long as attribution is given to the journal.

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