Unmet Support Service Needs Among Rural Family Caregivers: A Population-Based U.S. Study a population-based U.S. study

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Published Dec 26, 2023
DOI: https://doi.org/10.18103/mra.v11i12.4854

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Main Article Content

Erin Kent, PhD, MS
Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC; Cecil G. Sheps Health Services Research Center, University of North Carolina at Chapel Hill, Chapel Hill, NC
Elizabeth Aimone, MS
Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC
Maija Reblin, PhD
Department of Family Medicine, Larner College of Medicine, University of Vermont, Burlington, VT
Shakira J. Grant, MBBS, MSCR
Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC; Department of Medicine, Division of Hematology and Division of Geriatrics, University of North Carolina at Chapel Hill, Chapel Hill, NC
Lixin Song, PhD, RN, FAAN
Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC; School of Nursing, University of Texas Health Science Center at San Antonio, San Antonio, TX
Madeline Sterling, MD, MPH, MS
Department of Medicine, Weill Cornell Medicine, New York, NY
Yiqing Qian, PhD, MPH
8. Center for Equity in Aging, School of Nursing, Johns Hopkins University, Baltimore, MDDepartment of Psychiatry and Department of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC
Eliza M. Park, MD, MSc
Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC

Abstract

Background:  In rural communities around the world, individuals with serious health problems and their family caregivers often experience greater barriers to healthcare access. Identifying unmet support service needs of rural-dwelling caregivers can reveal intervention and policy targets. We examined unmet needs reported by rural caregivers in the U.S.


Methods: We used data from the 2015-2018 U.S. Behavioral Risk Factor Surveillance System that included the optional caregiving module (32 U.S. states, D.C. and Puerto Rico). We identified rural caregivers using metropolitan statistical area (rural) and the item, "During the past 30 days, did you provide regular care or assistance to a friend or family member who has a health problem or disability?" Logistic regression models incorporating sampling weights provided adjusted odds ratios (adjusted ORs) of factors associated with having any unmet support service needs, and specific need types: classes about giving care, help with service access, support groups, individual counseling, respite. Factors included sociodemographic (gender, race/ethnicity, age, education, income, employment, marital status) and caregiving-related (intensity [±20 hours/week and ±2-year duration], caregiver-care recipient relationship, and main health problem) variables.


Results: Of the 8,651 rural caregivers (representing 2.3 million) included, 16% endorsed unmet needs. Help accessing services was the most common need, followed by support groups and individual counseling. Factors associated with higher odds of any unmet need included Black vs. White race (adjusted OR: 1.74 [95%CI: 1.21-2.50]), college vs. high school graduate (adjusted OR: 1.85 [1.37-2.52]), and higher vs. lower intensity caregiving (adjusted OR: 2.18 [1.27-3.73]).


Conclusions: Many U.S. rural caregivers report unmet support service needs. Future interventions to benefit rural caregivers should target individuals and communities with the highest unmet needs.

Article Details

How to Cite
KENT, Erin et al. Unmet Support Service Needs Among Rural Family Caregivers: A Population-Based U.S. Study. Medical Research Archives, [S.l.], v. 11, n. 12, dec. 2023. ISSN 2375-1924. Available at: <https://esmed.org/MRA/mra/article/view/4854>. Date accessed: 26 dec. 2024. doi: https://doi.org/10.18103/mra.v11i12.4854.
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Issue
Vol 11 No 12 (2023): December Issue, Vol.11, Issue 12
Section
Research Articles

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