Unsung Heroes: Gay Physicians’ Lived Journeys during the HIV/AIDS Pandemic - Addendum

Main Article Content

Carl GA Jacob, PhD, Auxiliary Professor Daniel Lagacé-Roy, PhD, Full Professor

Abstract

The HIV/AIDS pandemic was a major crisis at the end of the 20th century. A defining moment in the history of health-related infections. It led to the transformation of its proponents, as well as their medical practice. This paper is an addendum to a research paper previously published in SAGE Open in 2019. The previously published paper used data from a study conducted by Jacob, in 2012. The data was gathered using semi-structured interviews with six Canadian gay physicians from different Canadian HIV/AIDS treatment centres. The study aimed to answer the following research question: What are the lived journeys of gay physicians while attempting to treat, care for, and cure/heal their HIV/AIDS patients during the pandemic, from 1981 to 2009? The results deduced from a qualitative and interpretive data analysis, as well as a literature review for the published research paper, suggest that through reflection on their experiences during the HIV/AIDS pandemic, they transformed their personal and professional identities, and rethought their relationship with their patients, as well as their professional, pharmaceutical, and community networks. The addendum, using unpublished information from the study and additional information from a literature review of material published by other proponents after the publication of the paper, aims to substantiate the testimonies of six Canadian gay physicians who fought against the HIV/AIDS pandemic and who advocated for their HIV/AIDS patients. In fact, these results are evidence of an untold and valuable period in medical history. For some, it will serve as a reminder. For others, it will be novel and even foreign. It was a time marked by a major crisis that mobilized gay physicians who were personally and professionally affected by their HIV/AIDS patients, and who were forever transformed by their response to the pandemic.

Keywords: HIV/AIDS, pandemic, epidemic, gay, homosexual, physicians, doctors, journeys, experiences, patients, memoir, testimony

Article Details

How to Cite
JACOB, Carl GA; LAGACÉ-ROY, Daniel. Unsung Heroes: Gay Physicians’ Lived Journeys during the HIV/AIDS Pandemic - Addendum. Medical Research Archives, [S.l.], v. 12, n. 4, apr. 2024. ISSN 2375-1924. Available at: <https://esmed.org/MRA/mra/article/view/5271>. Date accessed: 10 oct. 2024. doi: https://doi.org/10.18103/mra.v12i4.5271.
Section
Review Articles

References

1. Jacob CGA, Lagacé-Roy D. Unsung Heroes: Gay Physicians’ Lived Journeys During the HIV/AIDS Pandemic. SAGE Open. 2019;9(1):2 158244019827717. doi:10.1177/2 158244019827717

2. Jacob C. Recours à l’apprentissage expérientiel dans la transformation de la pratique médicale de six professionnels dans le contexte de la pandémie du VIH-SIDA. Thèse de doctorat. Université du Québec à Montréal. Montréal (QC); 2012. https://archipel.uqam.ca/4660/1/D2294.pdf

3. Grant MJ, Booth A. A typology of reviews: an analysis of 14 review types and associated methodologies. Health Inf Libr J. 2009;26(2):9 1-108. doi:10.1111/j.1471-1842.2009.00848.x

4. Vaismoradi M, Turunen H, Bondas T. Content analysis and thematic analysis: Implications for conducting a qualitative descriptive study. Nurs Health Sci. 2013;15 (3):398-405. doi:10.1111/nhs.12048

5. Rabkin J, Remien R, Wilson C. Good Doctors, Good Patients: Partners in HIV Treatment. New York (NY): NCM Publishers; 1994.

6. Kramer L. Reports from the Holocaust: The Story of an AIDS Activist. Revised Edition. New York (NY): St. Martin’s Press; 1994.

7. Guibert H. To the Friend Who Did Not Save My Life. London (UK): Serpent’s Tail; 1993.

8. Hodge-Wright M. Life Lessons: Stories of hope, love and laughter in the face of AIDS. London (UK): iUniverse; 2004.

9. Whitmore G. Someone Was Here: Profiles in the AIDS Epidemic. New York (NY): A Plume Book; 1988.

10. Davis SB, De Vries H. After Midnight: The Life and Death of Brad Davis. New York (NY): Pocket Books; 1997.

11. Callwood JJ. A Life with AIDS. Toronto (ON): Lester & Orpen Dennys; 1988.

12. Cox E. Thanksgiving: An AIDS Journal. New York (NY): Harper & Row; 1990.

13. Gélinas-O’Meara F. Ray: A Brave Man’s Journey. First Edition. Sherbrooke (QC): Camira Publishing; 1994.

14. Kavanagh J. Rudolf Nureyev: The Life. London (UK): Fig Tree; 2007.

15. Monette P. Borrowed Time: An AIDS Memoir. Reprint Edition. New York (NY): Avon Books; 1988.

16. Oyler C, Becklund L, Polson B. Go Toward the Light. New York (NY): Harper & Row; 1988.

17. Baxter DJ. The Least of These My Brethren: A Doctor’s Story of Hope and Miracles on an Inner-City AIDS Ward. New York (NY): Harmony Books; 1997.

18. Verghese A. My Own Country: A Doctor’s Story. New York (NY): Simon & Schuster; 1994.

19. Zuger A. Strong Shadows: Scenes from an Inner City AIDS Clinic. New York (NY): W.H. Freeman; 1995.

20. Bayer R, Oppenheimer GM. AIDS Doctors: Voices from the Epidemic - An Oral History. First Edition. Oxford (NY): Oxford University Press; 2000.

21. Boulanger L, Thomas R. Réjean Thomas: médecin de coeur, homme d’action. Montréal (QC): Les éditions Voix Parallèles; 2008.

22. McCoy L. HIV-positive patients and the doctor-patient relationship: perspectives from the margins. Qual Health Res. 2005;15(6):791-806. doi:10.1177/1049732305276752

23. Olivier C. Love at high risk: The many faces of AIDS. Ottawa (ON): Providence Road Press; 1996.

24. Scannell K. Death of the Good Doctor: Lessons from the Heart of the AIDS Epidemic. San Fransisco (CA): Cleis Press; 1999.

25. Selwyn PA. Surviving the Fall: The Personal Journey of an AIDS Doctor. New Haven (CT): Yale University Press; 1998.

26. Rispal MH. La méthode des cas: Application à la recherche en gestion. Paris (FR): De Boeck Supérieur; 2002.

27. Savoie-Zajc L, Karsenti T. Introduction à la recherche en éducation. Sherbrooke (QC): Éditions du CRP; 2000.

28. Miles MB, Huberman AM. Qualitative Data Analysis: An Expanded Sourcebook, 2nd Edition. London (UK): Sage Publications, Inc; 2005.

29. Bernard HR. Research Methods in Anthropology: Qualitative and Quantitative Approaches. 3rd Edition. Walnut Creek (CA): AltaMira Press; 2002.

30. Lewis JL, Sheppard SRJ. Culture and communication: Can landscape visualization improve forest management consultation with indigenous communities? Landsc Urban Plan. 2006;77(3):291-313. doi:10.1016/j.landurbplan.2005.04.004

31. Merriam SB. Case Study Research in Education: A Qualitative Approach. San Francisco (CA): Jossey-Bass; 1988.

32. Sherman DW, Ouellette SC. Physicians reflect on their lived experiences in long-term AIDS care. J Palliat Med. 2000;3(3):275-286. doi:10.1089/jpm.2000.3.275

33. Murbach R. Médecins et patients au temps du sida: le cas de Montréal. Anthropol Sociétés. 2003;15(2-3):67-90. doi:10.7202/015175ar

34. Lévy J, Quévillon L. Pratiques professionnelles médicales et VIH/sida: des témoignages à la fiction romanesque. Frontières. 2014;26(1-2). doi:10.7202/1034387ar

35. Johnson M. Working on a Miracle. New York (NY): Bantam Books; 1998.

36. Waddell T. Gay Olympian: The Life and Death of Dr. Tom Waddell. New York (NY): Knopf; 1996.

37. Valenti WM. AIDS: A Matter of Urgency: A Doctor’s Memoir. Rochester (NY): DrBillMedia; 2017.

38. Baxter DJ. One Life at a Time: An American Doctor’s Memoir of AIDS in Botswana. New York (NY): Skyhorse Publishing; 2018.

39. Bradford D. Tell Me I’m Okay: A Doctor’s Story. Illustrated Edition. Clayton (AU): Monash University Publishing; 2018.

40. Faulk AM. My Epidemic: An AIDS Memoir of One Man’s Struggle as Doctor, Patient and Survivor. 2nd Edition. Erie (USA): Culbertson Publishing; 2020.

41. Slotten RA. Plague Years: A Doctor’s Journey through the AIDS Crisis. First Edition. Chicago (IL): University of Chicago Press; 2020.

42. Ferri RS. Wounded Healers: Confessions of a Male Nurse, Book II. Kindle. Kindle; 2012. Accessed May 18, 2023. https://www.goodreads.com/book/show/20984273-wounded-healers

43. Munro I. The Lived Experience of Gay Men Caring for Others with HIV/AIDS: Living, Loving and Dying in the Era of HIV/AIDS. Saarbrücken (GR): VDM Verlag; 2008.

44. Ball SC. Voices in the Band: A Doctor, Her Patients, and How the Outlook on AIDS Care Changed from Doomed to Hopeful. Ithaca (NY): Cornell University Press; 2015.

45. Czerwiec MK. Taking Turns: Stories from HIV/AIDS Care Unit 371. University Park (PA): The Pennsylvania State University Press; 2017.

46. Varsalone DP, Deering S. My Journey as an AIDS Nurse. North Charleston (SC): CreateSpace Independent Publishing Platform; 2016.

47. Matzer E, Hugues V. Nurses on the Inside: Stories of the HIV/AIDS Epidemic in NYC. A Tree District Books Publication; 2019.

48. Fournier AM. The Zombie Curse: A Doctor’s 25-Year Journey into the Heart of the AIDS Epidemic in Haiti. Washington (DC): Joseph Henry Press; 2006.

49. Kidder T. Mountains Beyond Mountains: The Quest of Dr. Paul Farmer: A Man Who Would Cure the World. New York (NY): Delacorte Press; 2013.

50. Pogash C. As Real As It Gets: The Life of a Hospital at the Center of the AIDS Epidemic. New York (NY): Plume; 1992.

51. Shalof T. A Nurse’s Story: Life, Death and in-between in an Intensive Care Unit. Toronto (ON): McClelland & Stewart; 2004.

52. Vanderpuye-Donton NA. Hardship and Hope: Dr. Naa’s Love Affair with Persons Living with HIV and AIDS. Morrisville (NC): Lulu Publishing Services; 2019.

53. Emanuel EJ, Emanuel LL. Physician-Patient Relationship. J Am Med Assoc. 1992;267(16):2221-2226.

54. Giraldi W. One Life at a Time: A Conversation with Dr. Daniel Baxter. Los Angeles Review of Books. Published September 16, 2018. Accessed January 21, 2024. https://lareviewofbooks.org/article/one-life-at-a-time-a-conversation-with-dr-daniel-baxter

55. Bennett L. The Experience of Nurses Working with Hospitalized AIDS Patients. Aust J Soc Issues. 1992;27(2):125-143. doi:10.1002 /j.1839-4655.1992.tb01282.x

56. McGarrahan P. Transcending AIDS: Nurses and HIV Patients in New York City. Philadelphia (PA): University of Pennsylvania Press; 1994.

57. Sherman DW. AIDS-dedicated nurses: What can be learned from their perceptions and experiences. Appl Nurs Res. 2000;13(3):1 15-124. doi:10.1053/apnr.2000.7651