A Practical Method to Protect Patient Autonomy Using Conditional Medical Orders

Main Article Content

Richard B Stuart, DSW, ABPP Stephen Thielke, MD, MS, MA George R. Birchfield, MDc

Abstract

Throughout the world, patients have the right to determine what is done to their bodies, and to have their wishes recorded and honored when undergoing medical interventions. Unfortunately, many patients receive treatment that does not concur with their goals. Many patients are reluctant to discuss advance care planning because they are intimidated by the need to contemplate their own serious illness and/or death. Even if patient preferences are elicited, they may not be understood or clearly recorded, and if recorded, may not be accessible when needed. Conditional Medical Orders are one efficient way to concisely record patients’ preferred modes of treatment in a form that can be prominently placed in patients’ medical records and carried with them for use in outpatient medical care. It requires provider signatures because it combines an advance directive with treatment orders, providing assurance that the medical record accurately reflects patients’ preferences. Unlike most order sets that reveal little about patients and force them to make rigid binary choices, this order set identifies patients’ values and offers them more realistic options that stipulate the conditions under which each procedure is desired. Although only a single page, this order set is more complete than other forms. It is partly standardized and partly editable so it can be adapted to patient and provider preferences. The flexibility of this order set makes it more acceptable to many patients who have been averse to traditional approaches to advance care planning that they consider too rigid and insensitive to their evolving healthcare needs. Providers appreciate both the efficiency with which the orders can be completed and their specificity which facilitates delivering treatment that concurs with patients/ treatment goals.

Keywords: Conditional Medical Orders, advance care planning, goal-concurrent treatment, critical care, palliative care, end-of-life treatment.

Article Details

How to Cite
STUART, Richard B; THIELKE, Stephen; BIRCHFIELD, George R.. A Practical Method to Protect Patient Autonomy Using Conditional Medical Orders. Medical Research Archives, [S.l.], v. 12, n. 5, may 2024. ISSN 2375-1924. Available at: <https://esmed.org/MRA/mra/article/view/5329>. Date accessed: 30 june 2024. doi: https://doi.org/10.18103/mra.v12i5.5329.
Section
Research Articles

References

1. Lowler M, Olive K, Gijssels S, et. al. The European Code of Cancer Practice. Journal of Cancer Policy. 2021(6);28: 100282

2. Rietjens JAC, Sudore Ri, Connolly M. Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care. The Lancet: Oncology. 2017:15(5): e543-e551.

3. Khandelwal N, Curtis JR, Freedman VA, et. Al. How often is end-of-life care in the United States inconsistent with patients’ goals of care. J Palliative Medicine. 2017;20:12. https://doi.org/10.1089/jpm.2017.0065.

4. Sanders JJ, Curtis JR, Tulsky JA. Achieving goal-concordant care: a conceptual model and approach to measuring serious illness communication and its impact. J Palliative Medicine. 2018;21:52. doi.org/10.1089/jpm .2017.0459.

5. Sprung CL, Ricou B, Hartog CS, et al. Changes in end-of-life practices in European intensive care units from 1999-2016. JAMA. 2019;322(17):1692-1704. doi: 10.1001/jama.2 019.14608

6. Xia Q, Kularatna M, Virdun C, et al. Preferences for palliative and end-of-life care: a systematic review of discrete choice experiments. Value Health. 2023;(26)12:1795-1809).

7. Vilpert S, Meier C, Berche J. et al, Older adults’ medical preferences for the end of life: a cross-sectional population-based survey in Switzerland. BMJ Open, 2023;13:e071444 doi:1136/bmjopen-2-22-071444.

8. Martins-Branco D, Lopes S, Canario R, et al. Factors associated with the aggressiveness of care at the end of life for patients dying with cancer in hospital: a nationwide retrospective study in Portugal. ESMO Open 2020;5:e-000953. doi:10.1136/esmoope-2020-000953

9. Kherad O, Pfeiffger-Smadja N, Karlafti L, et al. Hopefully providers in these countries do explain the risks rather than offering intensive treatment as an undiscussed inevitability. The challenge of implementing less is more medicine: a European perspective. European Journal of Internal Medicine. 2020;76:1-7. https://doi.org/10.1080/0284186X.2022.2153621

10. Szilcza M, Wastessona JW, Morin L. Potential overtreatment in end-of-life care in adults 65 years or older dying from cancer: applying quality indicators on nationwide registries. Acta Ontologica. 2020;61(12): 1437-1445. https://doi.org/10.1080/0284186X.2022.2153621

11. https://eusem.org/wp-content/uploads/2017/10/EuSEM-Recommendations-End-of-life-care-in-EDs-September2017.pdf, accessed 4/17/2024

12. Ahmad, SR, Tarabochia AD, Budahn LA. Determining goal concordant care in the intensive care unit using electronic medical records. J Pain and Symptom Management. 2023;65;(3): e199-e206.
doi.org/10.1016/j.painsymman.2022.11.002

13. Olson MM, Windsor C, Chambers, et al. A scoping review of end-of-life communication in international palliative care guidelines for acute settings. J Pain and Symptom Management. 2021;62(2):425-437e2.
doi.org/10.1016/j.jpainshymman.2020.11.-32

14. Stuart RB, Birchfield G, Little, TE, Wetstone S, McDermott J. Use of conditional medical orders to minimize moral, ethical, and legal risk in critical care. Journal of Healthcare Risk Management. 2021;1-10.
https://doi.org/10.1002/jhrm.21487

15. Jain N, Bernacki,RF. Goals of care conversations in serious illness: a practical guide. Med Clin of N Amer. 2020;104: 375-389 https://doi.org/10.1016/j.mcna.2019.12.001

16. Richardson J, Watson L. The need for advance care planning documentation. European J Palliative Care. 2010;17:2):72-74

17. Hill AD, Fowler RA, Burns KEA, at al. Long-Term Outcomes and Health Care Utilization after Prolonged Mechanical Ventilation. Annals of the American Thoracic Society. 2017;14(3). https://doi.org/10.1513/AnnalsATS.201610-792OC

18. Baldomero AK, Melzer A, Greer N, et al. Effectiveness and harms of high-flow nasal oxygen (HFNO) for acute respiratory faiure: a systematic review protocol. BMJ Open. 2020;10:e034956, doi:10:1136/bmjoen-2019-034956.

19. American Geriatrics Society feeding tubes in advanced dementia position statement. J Am Geriatr Soc. 2014 Aug;62(8):1590-3. doi: 10.1111/jgs.12924.

20. Modes ME, Engelberg RA, Nielsen EL et al. Seriously ill patients’ prioritized goals and their clinicians’ perceptions of these goals. J Pain and Symptom Management. 2022;64; 410-418.

21. Feng X, Zahed H, Onwuka I. Cancer stage compared with mortality as end points in randomized clinical trials of cancer screening: a systematic review and meta-analysis. JAMA. Published online, April 7, 2024. doi: 10.1001/ jama.2024.5814.