Evaluation of Person-Centered Dementia Care Utilizing the CARES® Observational Tool
Main Article Content
Abstract
The training of staff in residential long-term care facilities, such as nursing homes and assisted living facilities, is increasingly being conducted via asynchronous, online training platforms. Even when organizations have in-person trainers to conduct synchronous training on-site or via online video tele-conferencing formats, a paucity of research has evaluated how training in any form affects staff members’ actual, observable, person-centered care practices, particularly when working with individuals living with Alzheimer’s disease or other related dementias (ADRD).
This study sought to fill this gap by evaluating the impact of the two CARES® online dementia care training programs on staff members’ observable care practices, as measured by the CARES® Observational Tool (COT), a previously published person-centered observational tool.1 The study hypothesized that staff completion of the two CARES® online training programs would not only result in increased knowledge of ADRD and person-centered care practices within long-term care facilities, but also lead to an observable increase in the use of person-centered care practices, as measured by the COT. A single group pre-test/post-test design was used, which included a baseline, immediate post-test, and one-month post-test data collection interval among the entire staff of a memory care unit (N = 26) at a nursing home in a large Midwestern city in the United States. The results showed statistically significant increases in both ADRD knowledge (p < .0001) and observable person-centered care (p < .0001). The CARES® online training programs and the COT seem to offer a promising solution to address the ongoing and expanding gaps in delivering and demonstrating effective person-centered care to people living with dementia (PLWD) in residential long-term care.
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References
2. National Center for Health Statistics. Biennial Overview of Post-acute and Long-term Care in the United States. Accessed November 25, 2023. https://data.cdc.gov/d/wibz-pb5q
3. 2020 Alzheimer’s Disease Facts and figures. Alzheimer’s & Dementia. 2020;16(3):391-460. doi:10.1002/alz.12068
4. Ma C, Guerra-Santin O, Grave A, Mohammadi M. Supporting dementia care by monitoring indoor environmental quality in a nursing home. Indoor and Built Environment. 2023;32(9): 1843-1861. Doi:10.1177/1420326X231175340
5. Gaugler JE, Yu F, Davila HW, Shippee T. Alzheimer’s disease and nursing homes. Health Affairs. 2014;33(4):650-657. doi:10.1377/hlthaff.2013.1268
6. Fazio S, Pace D, Flinner J, Kallmyer B. The Fundamentals of Person-Centered Care for Individuals with Dementia. The Gerontologist. 2018;58(suppl_1):S10-S19. doi:10.1093/geront/gnx122
7. Person‐Centered Care: a definition and essential elements. Journal of the American Geriatrics Society. 2015;64(1):15-18. doi:10.1111/jgs.13866
8. Spilsbury K, Hewitt C, Stirk L, Bowman C. The relationship between nurse staffing and quality of care in nursing homes: A systematic review. International Journal of Nursing Studies. 2011;48(6):732-750. doi:10.1016/j.ijnurstu.2011.02.014
9. Kuske B, Hanns S, Luck T, Angermeyer MC, Behrens J, Riedel-Heller SG. Nursing home staff training in dementia care: a systematic review of evaluated programs. International Psychogeriatrics. 2006;19(5):818-841. doi:10.1017/s1041610206004352
10. Shaw C, Williams KN, Perkhounkova Y. Educating nursing home staff in dementia Sensitive communication: Impact on antipsychotic medication use. Journal of the American Medical Directors Association. 2018;19(12):1129-1132. doi:10.1016/j.jamda.2018.09.030
11. Williams KN, Perkhounkova Y, Jao YL, et al. Person-Centered Communication for Nursing home Residents with Dementia: Four communication analysis methods. Western Journal of Nursing Research. 2017;40(7):1012-1031. doi:10.1177/0193945917697226
12. Yasuda M, Sakakibara H. Care staff training based on person-centered care and dementia care mapping, and its effects on the quality of life of nursing home residents with dementia. Aging and Mental Health/Aging & Mental Health. 2016;21(9):991-996. doi:10.1080/13607863.2016.1191056
13. Inker J, Jensen C, Barsness S, Stewart MM. Implementing Microlearning in Nursing Homes: Implications for policy and Practice in Person-Centered Dementia Care. Journal of Applied Gerontology. Published online June 11, 2020:073346482092983. doi:10.1177/0733464820929832
14. Jacobsen FF, Mekki TE, Førland O, et al. A mixed method study of an education intervention to reduce use of restraint and implement person-centered dementia care in nursing homes. BMC Nursing. 2017;16(1). doi:10.1186/s12912-017-0244-0
15. Testad I, Mekki TE, Førland O, et al. Modeling and evaluating evidence‐based continuing education program in nursing home dementia care (MEDCED)—training of care home staff to reduce use of restraint in care home residents with dementia. A cluster randomized controlled trial. International Journal of Geriatric Psychiatry. 2015;31(1):24-32. doi:10.1002/gps.4285
16. Sefcik JS, Boltz M, Dellapina M, Gitlin LN. Are interventions for formal caregivers effective for improving dementia care? A Systematic Review of Systematic Reviews. Innovation in Aging. 2022;6(2). doi:10.1093/geroni/igac005
17. Jutkowitz E, Brasure M, Fuchs E, et al. Care‐Delivery interventions to manage agitation and aggression in dementia nursing home and assisted living residents: a systematic review and meta‐analysis. Journal of the American Geriatrics Society. 2016;64(3):477-488. doi:10.1111/jgs.13936
18. Pleasant M, Molinari V, Dobbs D, Meng H, Hyer K. Effectiveness of online dementia caregivers training programs: A systematic review. Geriatric Nursing. 2020;41(6):921-935. doi:10.1016/j.gerinurse.2020.07.004
19. Dobbs D, Hobday J, Roker R, Kaas MJ, Molinari V. Certified nursing assistants' perspectives of the CARES® activities of daily living dementia care program. Appl Nurs Res. 2018 Feb;39:244-248. doi: 10.1016/j.apnr.2017.11.016
20. Pleasant ML, Molinari V, Hobday JV, Fazio S, Cullen N, Hyer K. An evaluation of the CARES® Dementia Basics Program among caregivers. Int Psychogeriatr. 2017 Jan;29(1):45-56. doi:10.1017/S1041610216001526
21. McKenna M, Brown LJ, Muller C, Vikram A, Berry K. The impact of psychosocial training on staff attitudes towards people living with dementia: A systematic review. International Journal of Older People Nursing. 2023 May;18(3):e12528. doi:10.1111/opn.12528
22. Snow AL, Jacobs ML, Palmer JA, Parmelee PA, Allen RS, Wewiorski NJ…Hartmann CW. Development of a new tool for systematic observation of nursing home resident and staff engagement and relationship. The Gerontologist. 2018;58(2), e15-e24.
23. Casey A-N, Low L-F, Goodenough B, Fletcher J, Brodarty H. Computer-assisted direct observation of behavioral agitation, engagement, and affect in long-term care residents. Journal of the American Medical Directors Association. 2014;15(7):1525-8610. https://doi.org/10.1016/j.jamda.2014.03.006
24. Ellis-Gray SL, Riley GA, Oyebode JR. Development and psychometric evaluation of an observational coding system measuring person-centered care in spouses of people with dementia. International Psychogeriatrics. 2014;26(11):1885-1895. doi:10.1017/S1041610214001215
25. Gilmore-Bykovskyi AL. Caregiver person-centeredness and behavioral symptoms during mealtime interactions: Development and feasibility of a coding scheme. Geriatric Nursing. 2015;36(2) Supplement:S10-S15. https://doi.org/10.1016/j.gerinurse.2015.02.018
26. Gaugler JE, Hobday JV, Robbins JC, Barclay MP. Direct care worker training to respond to the behavior of individuals with dementia. Gerontology & Geriatric Medicine. 2016;2:233372141562688. doi:10.1177/2333721415626888
27. Hobday JV, Gaugler JE, Mittelman MS. Feasibility and utility of online dementia care training for hospital staff: the CARES® Dementia-Friendly Hospital™ Program. Research in Gerontological Nursing. 2017;10(2):58-65. doi:10.3928/19404921-20170131-01
28. Hobday JV, Savik K, Smith S, Gaugler JE. Feasibility of Internet Training for Care Staff of Residents with Dementia: The CARES® Program. Journal of Gerontological Nursing. 2010;36(4):13-21. doi:10.3928/00989134-20100302-01
29. Hobday JV, Gaugler JE, Joly LK, Rosopa PJ, Graham BA, CicchinelliA, Lunde AM, Mittelman MS. Efficacy of the CARES® Dementia 5-Step Method for Hospitals™ online training and certification for hospital staff. (In press). Geriatric Nursing
30. Roberts E, Schneider EC, Dale M, Henage CB, Kelley CJ, Busby-Whitehead J. Implementation and outcomes of a dementia-friendly training program in five hospitals. (In press). Geriatric Nursing.
31. Bradford R, Smith L, Jennings J. Evaluation of an online dementia training program to reduce antipsychotic medication use in a nursing home. Journal of Gerontological Nursing. 2023;49(7):5-8. https://doi.org/10.3928/00989134-20230615-02