Describing a First Nations-led grant program for COVID-19 Research: The APPRISE-Ramsay First Nations COVID-19 grant program
Main Article Content
Abstract
We describe the establishment of a First Nations governed grant program that built on an existing Australian research collaboration during the height of the COVID-19 pandemic in 2020. Following a generous philanthropic donation, a process was initiated to centre and privilege First Nations perspectives and governance in the grant dissemination process. Decision-making was driven by First Nations people, including setting research principles and priorities, eligibility and review criteria, and in overseeing the advertising and grant review. This led to a widely distributed and highly competitive application round and the funding of ten grants from diverse organisations addressing various aspects of the COVID-19 response. The resulting grant outputs were diverse and impactful, including academic publications, articles for general readership, internal reports, social and traditional media, and frameworks. The principles from the grant round have underpinned the more recent formation of the ongoing First Nations Research preparednesS neTwork (FIRST), to further embed the important principles of First Nations self-determination for ongoing and future pandemic research.
Article Details
The Medical Research Archives grants authors the right to publish and reproduce the unrevised contribution in whole or in part at any time and in any form for any scholarly non-commercial purpose with the condition that all publications of the contribution include a full citation to the journal as published by the Medical Research Archives.
References
2. Flint SM, Davis JS, Su JY, et al. Disproportionate impact of pandemic (H1N1) 2009 influenza on Indigenous people in the Top End of Australia's Northern Territory. Med J Aust. May 17 2010;192(10):617-22. Doi:https://doi.org/10.5694/j.1326-5377.2010.tb03654.x
3. Rudge S, Massey PD. Responding to pandemic (H1N1) 2009 influenza in Aboriginal communities in NSW through collaboration between NSW Health and the Aboriginal community-controlled health sector. NSW Public Health Bull. 2010;21(2) Doi:https://dx.doi.org/10.1071/NB09040
4. Gall A, Law C, Massey P, Crooks K, Andrews R, Field E. Outcomes Reported for Australian First Nation Populations for the Influenza A(H1N1) 2009 Pandemic and Lessons for Future Infectious Disease Emergencies: a Systematic Review. Global Biosecurity. 07/10 2020;2(1) Doi:https://doi.org/10.31646/gbio.76
5. Thurber KA, Barrett EM, Agostino J, et al. Risk of severe illness from COVID‐19 among Aboriginal and Torres Strait Islander adults: the construct of ‘vulnerable populations’ obscures the root causes of health inequities. Australian and New Zealand Journal of Public Health. 2021/12/01/ 2021;45(6):658-663.
Doi:https://doi.org/10.1111/1753-6405.13172
6. Yashadhana A, Pollard-Wharton N, Zwi AB, Biles B. Indigenous Australians at increased risk of COVID-19 due to existing health and socioeconomic inequities. The Lancet Regional Health – Western Pacific. 2020;1 Doi:https://doi.org/10.1016/j.lanwpc.2020.100007
7. Pearson O, Schwartzkopff K, Dawson A, et al. Aboriginal community controlled health organisations address health equity through action on the social determinants of health of Aboriginal and Torres Strait Islander peoples in Australia. BMC Public Health. Dec 4 2020;20(1):1859. Doi:https://doi.org/10.1186/s12889-020-09943-4
8. Weightman M. The role of Aboriginal Community Controlled Health Services in Indigenous Health. Australian Medical Student Journal. 2013;4(1):49-52.
9. Trauer JM, Laurie KL, McDonnell J, Kelso A, Markey PG. Differential effects of pandemic (H1N1) 2009 on remote and indigenous groups, Northern Territory, Australia, 2009. Emerg Infect Dis. Sep 2011;17(9):1615-23. Doi:https://doi.org/10.3201/eid1709.101196
10. Miller A, Durrheim AD, Aboriginal and Torres Strait Islander Community Influenza Study Group. Aboriginal and Torres Strait Islander communities forgotten in new Australian National Action Plan for Human Influenza Pandemic: "Ask us, listen to us, share with us". Med J Aust. Sep 20 2010;193(6):316-7. Doi: https://doi.org/10.5694/j.1326-5377.2010.tb03939.x
11. Crooks K, Casey D, Ward JS. First Nations peoples leading the way in COVID-19 pandemic planning, response and management. Med J Aust. Aug 2020;213(4):151-152 e1. Doi:https://doi.org/10.5694/mja2.50704
12. Stanley F, Langton M, Ward J, McAullay D, Eades S. Australian First Nations response to the pandemic: A dramatic reversal of the ‘gap’. Journal of Paediatrics and Child Health. 2021/12/01 2021;57(12):1853-1856. Doi: https://doi.org/10.1111/jpc.15701
13. The Australian Partnership for Preparedness Research on Infectious Disease Emergencies. Privileging Aboriginal voices in infectious disease emergencies. Accessed 12 September, 2024. https://www.apprise.org.au/project/privileging-aboriginal-voices-in-infectious-disease-emergencies/
14. Crooks K, Massey PD, Taylor K, Miller A, Campbell S, Andrews R. Planning for and responding to pandemic influenza emergencies: it's time to listen to, prioritize and privilege Aboriginal perspectives. Western Pac Surveill Response J. Winter 2018;9(5 Suppl 1):5-7. Doi: https://doi.org/10.5365/wpsar.2018.9.5.005
15. Crooks K, Taylor K, Law C, Campbell S, Miller A. Engage, understand, listen and act: evaluation of Community Panels to privilege First Nations voices in pandemic planning and response in Australia. BMJ Glob Health. Aug 2022;7(8) Doi:https://doi.org/10.1136/bmjgh-2022-009114
16. Crooks K, Taylor K, Burns K, et al. Having a real say: findings from first nations community panels on pandemic influenza vaccine distribution. BMC Public Health. Nov 30 2023;23(1):2377. Doi:https://doi.org/10.1186/s12889-023-17262-7
17. Chamberlain C, Heris CL. Developing a culturally responsive trauma-informed public health emergency response framework for First Nations families and communities during COVID-19. Presented at: First Nations COVID-19 Research Symposium; 2023; Brisbane, Queensland, Australia.
18. Heris CL, Kennedy M, Graham S, et al. Key features of a trauma-informed public health emergency approach: A rapid review. Front Public Health. 2022;10:1006513. Doi:https://doi.org/10.3389/fpubh.2022.1006513
19. Graham S, Kamitsis I, Kennedy M, et al. A Culturally Responsive Trauma-Informed Public Health Emergency Framework for Aboriginal and Torres Strait Islander Communities in Australia, Developed during COVID-19. International Journal of Environmental Research and Public Health. 2022;19(23). Doi:https://doi.org/10.3390/ijerph192315626
20. Kennedy M, Bright T, Graham S, et al. “You Can’t Replace That Feeling of Connection to Culture and Country”: Aboriginal and Torres Strait Islander Parents’ Experiences of the COVID-19 Pandemic. International Journal of Environmental Research and Public Health. 2022;19(24). Doi: https://doi.org/10.3390/ijerph192416724
21. Heris CL, Chamberlain C, Woods C, et al. 10 Ways we can better respond to the pandemic in a trauma-informed way. The Conversation. 2021. https://theconversation.com/10-ways-we-can-better-respond-to-the-pandemic-in-a-trauma-informed-way-168486
22. Kamitsis I, Jones KA, Bright T, et al. Developing a culturally responsive traumainformed public health emergency response framework for First Nations families and communities during COVID-19: Workshop Report. 2021. https://mspgh.unimelb.edu.au/__data/assets/pdf_file/0003/4084185/APPRISE-Workshop-Report-20220315.pdf
23. Chamberlain C, Bright T. “You Can’t Replace That Feeling of Connection to Culture and Country” Aboriginal and Torres Strait Islander Parents’ Experiences of the COVID-19 Pandemic. Presented at: Population Health Congress; 2022; Adelaide, South Australia, Australia.
24. Atkinson C. In the Eye of the Storm: Community-led Indigenous informed responses during a natural disaster. Accessed 12 September, 2024. https://mspgh.unimelb.edu.au/centres-institutes/onemda/research-group/indigenous-health-equity-unit/research/apprise-grant/activities/northern-rivers-community-healing-hub
25. Modderman R, Hughes JT. Live Strong, COVID-Safe and Frailty Free after starting dialysis: an Aboriginal and Torres Strait Islander renal care perspective. Presented at: First Nations COVID-19 Research Symposium; 2023; Brisbane, Queensland, Australia.
26. Modderman R, Paolucci O, Zabeen S, et al. Physiotherapy-led restorative care enabling improved frailty measures in adults after starting dialysis in Northern Territory of Australia: The ‘Frailty-to-Fit’ pilot study. The Lowitja Journal. 2024/01/01/ 2024;2:100020. Doi:https://doi.org/10.1016/j.fnhli.2024.100020
27. Zabeen S, Eades A-M, Paolucci O, et al. Evaluation of an innovative Live Strong COVID-mitigating healthcare delivery for adults after starting dialysis in the Northern Territory: A qualitative study. The Lowitja Journal. 2023/01/01/ 2023;1:100001. Doi:https://doi.org/10.1016/j.fnhli.2023.100001
28. Adams F. New Bus for Renal Patients. NT News. Accessed 12 September 2024. https://www.menzies.edu.au/icms_docs/325957_New_bus_for_renal_patients.jpg
29. Hughes JT. Transition Models of Care for Adults Starting Dialysis. Presented at: Renal Society of Australasia Annual Conference; 2022; Darwin, Northern Territory, Australia.
30. Modderman R. Informing the Evidence-Practice Gap About Frailty Support for Aboriginal and Torres Strait Islander People with End Stage Kidney Disease: The ‘Frailty to Fit’ Pilot Study. Presented at: Australian New Zealand Society of Nephrology Annual Scientific Meeting; 2022; Sydney, NSW, Australia.
31. Modderman R. Informing the Evidence-Practice Gap about Fraility Detection Measures Among Adult Aboriginal and Torres Strait Islander People with Advanced Kidney Disease: The Live Strong, COVID-Safe, Frailty Free After Starting Dialysis Project. Presented at: Australian New Zealand Society of Nephrology Annual Scientific Meeting; 2021; Online.
32. Poelina R, Hoy C, Clements C. A culturally-specific overcrowding guideline for COVID-19 pandemic planning, response and recovery in remote Kimberley communities. Presented at: First Nations COVID-19 Research Symposium; 2023; Brisbane, Queensland, Australia.
33. Clements C, Hoy C, Bin-Maarus L, Morris S, Christophers R. Aboriginal peoples' lived experience of household overcrowding in the Kimberley and implications for research reciprocity in COVID-19 recovery. Aust N Z J Public Health. 2023;47(6) Doi: https://doi.org/10.1016/j.anzjph.2023.100104
34. Hoy C, Clements C, Christophers R. Principles of Engaging with Community. Presented at: Kimberley Aboriginal Health Research Alliance Forum; 2022; Broome, Western Australia, Australia.
35. Morris S, Christophers R. Aboriginal Environmental Health Conference; 2021; Perth, Western Australia, Australia
36. Clements C, Ward J. Learning more about people’s experiences of overcrowding in the Kimberley. Presented at: 13th National Aboriginal and Torres Strait Islander Environmental Health Conference; 2022; Darwin, Northern Territory, Australia.
37. Ward J. Aboriginal-led development of a culturally-specific overcrowding guideline for COVID19 planning. Presented at: Preventive Health Conference; 2021; Perth, Western Australia, Australia.
38. Raven M, Jopson W, Katz I. Aboriginal Community Controlled Health Services and Aboriginal and Torres Strait Islander People’s responses to the COVID-19 Pandemic. Presented at: First Nations COVID-19 Research Symposium; 2023; Brisbane, Queensland, Australia.
39. Cadet-James Y. Telehealth Use in Cape York Communities in response to COVID-19 travel restrictions. Presented at: First Nations COVID-19 Research Symposium; 2023; Brisbane, Queensland, Australia.
40. Pascua K. First Nations COVID-19 Pandemic Response: Harnessing the evidence from an urban First Nations health ecosystem to inform ongoing response, recovery and health system adaptation. Presented at: First Nations COVID-19 Research Symposium; 2023; Brisbane, Queensland, Australia.
41. Fredericks B, McAvoy S. Using systems thinking to better understand risks and protective factors at play for urban Indigenous peoples during COVID-19. Presented at: First Nations COVID-19 Research Symposium; 2023; Brisbane, Queensland, Australia.
42. Fredericks B, Bradfield A, Ward J, et al. ‘We know what our communities need’: What the Indigenous health sector reveals about pandemic preparedness in urban Indigenous communities in Australia. The Lowitja Journal. 2024/01/01/ 2024;2:100019. Doi:https://doi.org/10.1016/j.fnhli.2024.100019
43. Fredericks B, Bradfield A, McAvoy S, et al. Responding to COVID-19: How group model building can assist the health and well-being of urban Indigenous communities in Australia. Australian Journal of Social Issues. 2024/06/01 2024;59(2):462-486. Doi:https://doi.org/10.1002/ajs4.303
44. Fredericks B, Bradfield A, McAvoy S, et al. The Burden of the Beast: Countering Conspiracies and Misinformation within Indigenous Communities in Australia. M/C Journal. 02/21 2023;25(1) Doi: https://doi.org/10.5204/mcj.2862
45. Fredericks B, Bradfield A, Ward J, et al. Mapping pandemic responses in urban Indigenous Australia: Reflections on systems thinking and pandemic preparedness. Aust N Z J Public Health. 2023;47(5) Doi: https://doi.org/10.1016/j.anzjph.2023.100084
46. Fredericks B, Bradfield A, Ward J, et al. Tackling conspiracies and misinformation within Aboriginal and Torres Strait Islander communities. Croakey Health Media. 2022. Accessed 12 September 2024. https://www.croakey.org/tackling-conspiracies-and-misinformation-within-aboriginal-and-torres-strait-islander-communities/
47. Fredericks B, Ward J, McAvoy S, et al. Innovative research explores responses to COVID-19 among Indigenous communities in Brisbane. Croakey Health Media. 2021. Accessed 12 September 2024. https://www.croakey.org/innovative-research-explores-responses-to-covid-19-among-indigenous-communities-in-brisbane
48. Fredericks B, Ward J. Understanding health responses to COVID-19 in urban Indigenous communities in Brisbane. Croakey Health Media. 2021. Accessed 12 September 2024. https://www.croakey.org/understanding-health-responses-to-covid-19-in-urban-indigenous-communities-in-brisbane/
49. Fredericks B. What the urban Indigenous health sector reveals about systemic responses to COVID-19. Presented at: Native American and Indigenous Studies Association Conference Regional Gathering; 2022; Brisbane, Queensland, Australia.
50. Spierings S. Pandemic health messaging for Indigenous peoples during COVID-19. Presented at: First Nations COVID-19 Research Symposium; 2023; Brisbane, Queensland, Australia.
51. Spierings S. Pandemic health messaging for Indigenous peoples. Presented at: 2nd Australasian COVID-19 Conference; 2022; Sydney, NSW, Australia.
52. Saunders P. Revisiting the ‘Gambling Bug’ during COVID isolation: Using Participatory Action Research to inform a holistic Aboriginal gambling awareness strategy in a regional and urban setting. Presented at: First Nations COVID-19 Research Symposium; 2023; Brisbane, Queensland, Australia.
53. McCarthy S, Widdicombe D. The experiences of using telehealth in rural and regional Victorian ACCOs during COVID-19: perspectives from health service managers, clinic staff and patients. Presented at: First Nations COVID-19 Research Symposium; 2023; Brisbane, Queensland, Australia.
54. The Australian Partnership for Preparedness Research on Infectious Disease Emergencies. FIRST Governance Group. Accessed 12 September, 2024. https://www.apprise.org.au/people/people-category/first-governance-group/