Resilience in the Context of Informal Caregiving: A Scoping Study
Main Article Content
Abstract
To examine the state of the science surrounding the concept of resilience as used in the context of informal caregiving. This study was designed as a scoping study consisting of a five stage process to investigate the extent, range and nature of research activity related to resilience and informal caregiving. Data consisted of peer-reviewed articles in the scientific literature. One database (PubMed) was determined to be most relevant to this study. Search terms included “family caregiver and resilience” or “informal caregiver and resilience.” The date of publication was restricted from January 2003 to May 2014. Forty articles were included in the analysis. The analytic technique included developing a codebook, coding all articles using 13 categories of interest, and compiling descriptive characteristics attributed to the concept of resilience. Content and thematic analytic techniques were used. The initial search yielded 178 citations, of which 137 were read by multiple team members. The final data set included 40 articles that reported 41 studies. Twenty-two studies applied quantitative approaches, 5 were purely qualitative work, 7 used a mixed methods approach and 7 were reviews. Resilience was found to be a concept relevant to multiple disciplinary perspectives and interdisciplinary co-authorship was prevalent in the literature. Typically, the context of caregiving was framed by health conditions that impact the care recipient’s capability to perform the activities associated with daily living. Spousal caregivers were the most dominant relationship studied, followed by parental relationship. Age of caregivers care recipients varied widely. Studies conceptualized resilience in various ways, with 19 using theoretical or conceptual framework to various degrees; only 12 reported the measures of resilience. Across studies, resilience emerged as a protective factor for the burdens of caregiving. This scoping study revealed that the concept of resilience may have important implications in understanding the complex trajectories of end-of-life caregiving.
Article Details
How to Cite
ZHAO, Xiaohua et al.
Resilience in the Context of Informal Caregiving: A Scoping Study.
Medical Research Archives, [S.l.], v. 4, n. 6, oct. 2016.
ISSN 2375-1924.
Available at: <https://esmed.org/MRA/mra/article/view/690>. Date accessed: 17 nov. 2024.
Keywords
informal caregiving; resilience; review; scoping
Section
Research Articles
The Medical Research Archives grants authors the right to publish and reproduce the unrevised contribution in whole or in part at any time and in any form for any scholarly non-commercial purpose with the condition that all publications of the contribution include a full citation to the journal as published by the Medical Research Archives.
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Cassidy, T. (2013). Benefit finding through caring: the cancer caregiver experience. Psychology & Health, 28(3), 250-266. [PubMed: 22928621]
Cassidy, T., Giles, M., & McLaughlin, M. (2014). Benefit finding and resilience in child caregivers. British Joournal of Health Psychology, 19(3), 606-618. [PubMed: 23869796]
Chappell, N. L., & Dujela, C. (2008). Caregiving: predicting at-risk status. Canadian Journal of Aging, 27(2), 169-179. [PubMed: 18845512]
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Connor, K. M., & Davidson, J. R. (2003). Development of a new resilience scale: the Connor-Davidson Resilience Scale (CD-RISC). Depression and Anxiety, 18(2), 76-82. [PubMed: 12964174]
Davis, K., Drey, N., & Gould, D. (2009). What are scoping studies? A review of the nursing literature. International Journal of Nursing Studies, 46(10), 1386-1400. [PubMed: 19328488]
Dyer, J. G., & McGuinness, T. M. (1996). Resilience: analysis of the concept. Archives of Psychiatric Nursing, 10(5), 276-282. [PubMed: 8897710]
Eggerman, M., & Panter-Brick, C. (2010). Suffering, hope, and entrapment: resilience and cultural values in Afghanistan. Social Science and Medicine, 71(1), 71-83. [PubMed: 2045211]
Fraser, E., & Pakenham, K. I. (2009). Resilience in children of parents with mental illness: relations between mental health literacy, social connectedness and coping, and both adjustment and caregiving. Psychology, Health and Medicine, 14(5), 573-584. [PubMed: 19844836]
Gaugler, J. E., Kane, R. L., & Newcomer, R. (2007). Resilience and transitions from dementia caregiving. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 62(1), P38-44. [PubMed: 17284556]
Giesbrecht, M., Wolse, F., Crooks, V. A., & Stajduhar, K. (2015). Identifying socio-environmental factors that facilitate resilience among Canadian palliative family caregivers: a qualitative case study. Palliative and Supportive Care, 13(3), 555-565. [PubMed: 24477169]
Hall, H., Cote, J., McBean, A., & Purden, M. (2012). The experiences of patients with pulmonary arterial hypertension receiving continuous intravenous infusion of epoprostenol (Flolan) and their support persons. Heart & Lung, 41(1), 35-43. [PubMed: 21784527]
Harmell, A. L., Chattillion, E. A., Roepke, S. K., & Mausbach, B. T. (2011). A review of the psychobiology of dementia caregiving: a focus on resilience factors. Current Psychiatry Reports, 13(3), 219-224. [PubMed: 21312008]
Heppenstall, C. P., Wilkinson, T. J., Hanger, H. C., Dhanak, M. R., & Keeling, S. (2013). Impacts of the emergency mass evacuation of the elderly from residential care facilities after the 2011 Christchurch earthquake. Disaster Medicine and Public Health Preparedness, 7(4), 419-423. [PubMed: 24229527]
Hernandez, M., Barrio, C., & Yamada, A. M. (2013). Hope and burden among Latino families of adults with schizophrenia. Family Process, 52(4), 697-708. [PubMed: 24329411]
House, L. A., Russell, H. F., Kelly, E. H., Gerson, A., & Vogel, L. C. (2009). Rehabilitation and future participation of youth following spinal cord injury: caregiver perspectives. Spinal Cord, 47(12), 882-886. [PubMed: 19528994]
Kramer, B. J. (1997). Gain in the caregiving experience: where are we? What next? The Gerontologist, 37(2), 218-232. [PubMed: 9127978]
Lamis, D. A., Wilson, C. K., Tarantino, N., Lansford, J. E., & Kaslow, N. J. (2014). Neighborhood disorder, spiritual well-being, and parenting stress in African American women. Journal of Family Psychology : JFP: Journal of the Division of Family Psychology of the American Psychological Association (Division 43), 28(6), 769-778. [PubMed: 24707802]
Lavretsky, H., Siddarth, P., & Irwin, M. R. (2010). Improving depression and enhancing resilience in family dementia caregivers: a pilot randomized placebo-controlled trial of escitalopram. The American Journal of Geriatric Psychiatry, 18(2), 154. [PubMed: 20104071]
Leve, L. D., Fisher, P. A., & Chamberlain, P. (2009). Multidimensional treatment foster care as a preventive intervention to promote resiliency among youth in the child welfare system. Journal of Personality, 77(6), 1869-1902. [PubMed: 19807861]
Lim, S., Zoellner, J. M., Ajrouch, K. J., & Ismail, A. I. (2011). Overweight in childhood: the role of resilient parenting in African-American households. American Journal of Preventive Medicine, 40(3), 329-333. [PubMed: 21335265]
Lin, F. Y., Rong, J. R., & Lee, T. Y. (2013). Resilience among caregivers of children with chronic conditions: a concept analysis. Journal of Multidisciplinary Healthcare, 6, 323-333. [PubMed: 24039436]
Luthar, S. S., Cicchetti, D., & Becker, B. (2000). The construct of resilience: a critical evaluation and guidelines for future work. Child Development, 71(3), 543-562. [PubMed: 10953923]
McCubbin, H. I., & Patterson, J. M. (1983). The family stress process: the double ABCX model of adjustment and adaptation. Marriage and Family Review, 6(1-2), 7-37.
McCubbin, M. A., & McCubbin, H. I. (1993). Families coping with illness: the resiliency model of family stress, adjustment and adaptation. In C. B. Danielson, B. H. Bissell & P. W. Fry (Eds.), Families, Health & Illness: Perspectives on Coping and Intervention (pp. 21-63). St. Louis, MO: Mosby Year Book, Inc.
Merriam-Webster. (n. d.). Resilence. Retrieved January 20, 2016, from http://www.merriam-webster.com/dictionary/resilience
Morse, J. M. (1997). Considering theory derived from qualitative research. In J. M. Morse (Ed.), Completing a Qualitative Project (pp. 163-188). Thousand Oaks, CA: Sage.
Morse, J. M., & Penrod, J. (1999). Linking concepts of enduring, uncertainty, suffering, and hope. Image –The Journal of Nursing Scholarship, 31(2), 145-150. [PubMed: 10380390]
Nabors, L. A., Kichler, J. C., Brassell, A., Thakkar, S., Bartz, J., Pangallo, J., . . . Lundy, H. (2013). Factors related to caregiver state anxiety and coping with a child's chronic illness. Family Systems Health, 31(2), 171-180. [PubMed: 23795628]
Neill, J. T., & Dias, K. L. (2001). Adventure education and resilience: a double-edged sword. Journal of Adventure Education and Outdoor Learning, 1, 35-42.
O'Dwyer, S., Moyle, W., & van Wyk, S. (2013). Suicidal ideation and resilience in family carers of people with dementia: a pilot qualitative study. Aging & Mental Health, 17(6), 753-760. [PubMed: 23611756]
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